June is Aphasia Awareness Month. It’s a time to spread the word about aphasia and to learn more about how you can help those affected by it. Here are 9 amazing online resources for you to explore and share to help raise awareness about aphasia:
The American Speech-Language-Hearing Association (ASHA) is the national professional, scientific, and credentialing association for speech-language pathologist in the United States. They provide a number of resources for the public and professionals related to communication and swallowing disorders.
For the public, they offer a good explanation of what aphasia is and how it can impact families. For professionals, the practice portal for aphasia is a great place to find treatment options. For a review of the published evidence for various assessments and treatments, the evidence map for aphasia is extremely helpful.
2) Aphasia Recovery Connection
The Aphasia Recovery Connection (ARC) is a non-profit organization that is working to help end the isolation of aphasia. They offer several online Facebook groups to connect people with aphasia, as well as high quality live events such as Aphasia@Sea cruises and Aphasia U Boot Camp. ARC offers a community of people who really understand aphasia, and is open to all people with aphasia, family members or care partners, and professionals.
3) Australian Aphasia Rehab Pathway
This site says it very clearly: “The Australian Aphasia Rehabilitation Pathway (AARP) is a set of care standards for aphasia management. It has been designed for speech pathologists to help guide person-centered, evidence-based aphasia services. It aims to optimize the overall rehabilitation journey for people with aphasia and their families/friends.” It truly is a tremendous resource for best practice guidelines.
4) Tactus Therapy
Aphasia is our passion. We work hard to not only bring you evidence-based apps for aphasia therapy, but also to provide you with useful resources, blog posts, and education about aphasia and speech therapy. Check out the Aphasia Resources section of our site for several helpful links for professionals and families
We profile people with aphasia and their families (meet Byron, Dylan, Barbara, and Jennifer) as well as therapists who treat aphasia (get to know Karen, Megan, and Fabi). We offer helpful “what is” articles to explain communication disorders like aphasia, apraxia, and primary progressive aphasia. On the blog you’ll find “how to” articles for aphasia treatment.
5) Aphasia Institute
The Aphasia Institute must be an amazing local resource for the residents of Toronto. Fortunately for the rest of us, they make many of their innovations and resources available to everyone through trainings, an online store, and digital downloads.
The Supported Conversation for Adults With Aphasia (SCA™) technique should be mandatory training for all healthcare professionals. This overview will give you the basics on how to get your message IN, help get their message OUT, and to VERIFY that all went well while both acknowledging and revealing the competence of the person with aphasia. If you want to know more, take this self-directed online training module and share it with others.
6) Aphasia Software Finder
There are so many different computer programs and touch-screen apps for aphasia treatment – it can be overwhelming! The Tavistock Trust for Aphasia has put together a helpful website called the Aphasia Software Finder to help families and professionals navigate their options in an aphasia-friendly format.
AphasiaAccess is an alliance of Life Participation Approach to Aphasia (LPAA) providers. Founded by respected researchers and aphasia center leaders, AphasiaAccess offers support, education, and resources for SLPs and other aphasia professionals.
8) Aphasia Simulations
It can be difficult to know what it’s like to have aphasia. A frequent analogy is that it’s like being in a country where you don’t know the language or have only studied it for a few weeks. But what does that really feel like?
The Aphasia Simulations website attempts to simulate what it might be like to have aphasia using a variety of demonstrations. A new free app called Aphasia Education simulates what it’s like to go about your day in town with aphasia. Both are valuable tools for educating others and learning what people with aphasia may be experiencing.
9) Aphasia Videos
There are many wonderful videos that explain aphasia or share personal experiences. The Centre for Clinical Research Excellence in Aphasia has compiled many of these videos into one Aphasia Channel on YouTube so you can find them in one place.
Sarah Scott is a young stroke survivor with aphasia who has, with the help of her mother, documented her progress every year for the past 7 years. It would be wonderful for more people with aphasia to document their progress so we can finally put to rest the myth that people can’t improve after the first year.
What are your favorite aphasia awareness resources?
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